Hey everyone, today I want to talk about hidden battles that many of us, and our students, face.

Lately, I’ve been navigating a bit of a hidden battle: my jaw has decided to stage a protest. Turns out, I’ve been dealing with some pretty significant Temporomandibular Joint (TMJ) issues for the past six months. It’s been… eye-opening, to say the least.

Living on a diet that mostly resembles baby food has been an adventure in itself. But the real, though invisible, struggle has been navigating my work as a speech-language pathologist. This is challenging while my jaw feels like it’s constantly seizing up. Talking, which is kind of my main gig, has become a surprisingly painful endeavor. 

And smiling? Well, let’s just say my attempts probably look more like a polite wince, because that hurts too. Even simple things like brushing my teeth have become a daily debate with my pain levels. A full day of therapy often leaves my jaw joint feeling like it’s full of glass shards. What’s more, the muscles in my jaw and neck are usually screaming by the time I get home.  And as a delightful bonus – it gives me a fantastic headache as well!

The “Janky Jaw” Connection: Our Students’ Overload

And as I’ve been navigating this constant discomfort, especially the pain that flares up with every word and forced smile, I’ve been struck by a profound thought: This has to be what so many of our amazing students and clients experience every single day.

Think about it. For me, this jaw thing is (hopefully!) a temporary invisible challenge. But for so many of the people we work with, their “janky jaw” might be sensory overload. It makes the classroom feel like a constant buzzing nightmare. It might be the anxiety that makes even showing up feel like climbing Mount Everest.

For our students with ADHD, the very act of sitting still for extended periods can feel physically and mentally exhausting. It is a constant battle against their natural inclination to move and explore. Or perhaps there’s an emotional weight that makes it hard to even crack a smile, no matter how much they might want to.  Even something as routine as braces might impact a student’s day.  And it all adds up until something fizzles.

It’s Not Just About Diagnoses: The Universal Hidden Struggle

And honestly, it’s not just our students with specific “diagnosed” challenges that may be overlooked. Think about all our students. When was the last time any of us spent a full seven-hour day crammed into a hard, probably not-ergonomically-designed student desk? Even at professional conferences, where they usually at least give us padded chairs, we’re all groaning and stretching by the end of the day!

Imagine that discomfort multiplied for a kid trying to learn and focus for hours on end. They are trying to absorb material they didn’t ask for, and are going to be judged on later.  Oh, and if attention wanes, they will definitely be called out on it.  Guess what – it doesn’t end with the dismissal bell – they also have homework.

The Hidden Battle Lens of Empathy

Just like my “smiling through the pain” to do my job, our students are often putting in this incredible, unseen effort just to get through the day. They’re navigating a world that wasn’t necessarily built for their unique needs (or even adult comfort!), and they’re doing it with a level of resilience that honestly blows me away.

This personal experience has given me just the tiniest glimpse into what it feels like to have your body actively fight against the demands of the day. It’s made me even more determined to approach everyone we work with – and even just observe the school environment – with extra doses of empathy, patience, and understanding. Because you never really know what kind of “janky jaw” someone else is dealing with. It could be physical, sensory, emotional, neurological, or just the plain discomfort of being a kid in a system that asks a lot of them.

Your Thoughts on Hidden Battles?

What are your thoughts? What other often-overlooked challenges do you think are important for us to keep in mind in our work?

Want more SEL content? Try these articles!

• The Real Language of Emotions: Teaching Feelings
• Empowering Kids Who Stutter: Knowledge, Acceptance, and Practical Resources
• Speech Therapy Wins! Building Progress Power in Kids

Keep Speechifying!

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As a Speech Language Pathologist, I’m used to being on the clinician side of the table, helping others with communication and cognition.  I’m the one with the answers, right?  But when I found myself trying to cope with the symptoms of a concussion that had lasted months past the expected recovery time, my perspective flipped.

What is Post-Concussive Disorder?

Post-Concussive Disorder (PCD) is the catch-all for these lingering symptoms. Symptoms can include headaches, nausea, mental fog, dizziness, difficulty concentrating, poor memory, noise and/or light sensitivity, vision disturbances, anxiety, depression… all symptoms associated with a concussion and then some. It’s not understood what causes it, how to treat it, or even how much of the population experiences it.  Numbers range from 11% to 82% of mild traumatic brain injury (mTBI) cases.  I know, helpful, right?!

So let me back up a little.  It was the early summer of 2022, and we had emptied our pool to do repairs and clean, and I, being the wonderful wife and mother that I am, got up early to get a jump on the heat.  Little did I realize that the dew was heavy enough to turn our vinyl liner into a slip-n-slide, and no sooner had I stepped off the fiberglass steps than I found myself on my back, the occipital portion, where my skull rounds to connect to my spinal column, on the edge of the fiberglass step.

I don’t think I lost consciousness, but we went in that day, and had a scan that showed that there was no apparent bruising on my brain.  I had mild to moderate typical concussion symptoms, but my neck pain never went away.  So then I went to physical therapy, Round 1, which alleviated the neck pain to a tolerable level.

Well, now the school year was starting.  I was still feeling lightheaded and dizzy if I turned too fast, still had some neck pain, had a persistent headache.  I felt like my mind was moving through sludge.  Getting through groups of elementary kids was…difficult.  And the problem was, it continued to worsen, to the point where I was having daily migraines and took medical leave that October.

After that, I had the school district breathing down my neck to get back to work.  We were struggling to find a solution.  I couldn’t think clearly most of the time, even having word recall issues.  I struggled even knowing what it was that was wrong with me, just that I wasn’t right.  My general practitioner isn’t much help, but we do find a “concussion doctor” who, of course, is an hour away and doesn’t take our insurance.  

After a couple of months of testing, I find that I now have eyes that focus in slightly different directions.  I go to physical therapy (Round 2) to work on visual integration, I go to speech therapy to work on the mental fog and memory.  I am hiding in my room in the dark with one lamp, and telling my family to keep quiet.  Thank goodness my kids are teens.

It comes to the point I have to resign from my job in May 2023.  At that point, even with nearly six months of treatment orchestrated by the concussion expert, I’m still having daily migraines.  My speech therapist was wonderful, and had me walking the track around the rehab center’s gym while I performed memory and cognition tasks to aid in desensitization to light and noise.

Now, nearly two years after, I have headaches almost daily, but they are headaches, not migraines.  I’ve had two sets of lenses because my eye focus has changed.  But the mental fog has dissipated, and I feel like myself again for the most part.  I seem to misspell words more now, and memory is still an issue compared to pre-concussion.  And I’ve picked up a slight stutter that comes out when my brain is overdoing it.

Now, why do I tell you all this?  As speech-language pathologists, we often are treating individuals who have experienced a concussion, and we may not even realize it.  Because no one tells the speech teacher in the corner closet, right?  And we should be aware that these symptoms can persist weeks, months, even years after the typical recovery period.

 We need to be prepared to go to bat for our students who might need extra help with coping strategies in the aftermath of a concussion.  They may not be able to describe what’s wrong.  These challenges are invisible, and in many ways, unmeasurable, and can add up to creating emotional issues as well.  Students who have experienced a concussion may need accommodations that are not “listed” in our handy IEP software.  They may need cognitive therapy to address attention, memory or problem-solving issues.  Counseling may even be necessary.

As speech-language professionals, we need to raise awareness and understanding both of concussions and post-concussive disorder.  We need to help families navigate the symptoms, and educate teachers watch for the signs in their students.

Together, we can help them on the road to recovery, one step at a time.

Wishing the best to my powerful speechies,

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The post The Long Road: My Journey with Post-Concussive Disorder appeared first on Mrs. Speech Online.