As a Speech Language Pathologist, I’m used to being on the clinician side of the table, helping others with communication and cognition.  I’m the one with the answers, right?  But when I found myself trying to cope with the symptoms of a concussion that had lasted months past the expected recovery time, my perspective flipped.

What is Post-Concussive Disorder?

Post-Concussive Disorder (PCD) is the catch-all for these lingering symptoms. Symptoms can include headaches, nausea, mental fog, dizziness, difficulty concentrating, poor memory, noise and/or light sensitivity, vision disturbances, anxiety, depression… all symptoms associated with a concussion and then some. It’s not understood what causes it, how to treat it, or even how much of the population experiences it.  Numbers range from 11% to 82% of mild traumatic brain injury (mTBI) cases.  I know, helpful, right?!

So let me back up a little.  It was the early summer of 2022, and we had emptied our pool to do repairs and clean, and I, being the wonderful wife and mother that I am, got up early to get a jump on the heat.  Little did I realize that the dew was heavy enough to turn our vinyl liner into a slip-n-slide, and no sooner had I stepped off the fiberglass steps than I found myself on my back, the occipital portion, where my skull rounds to connect to my spinal column, on the edge of the fiberglass step.

I don’t think I lost consciousness, but we went in that day, and had a scan that showed that there was no apparent bruising on my brain.  I had mild to moderate typical concussion symptoms, but my neck pain never went away.  So then I went to physical therapy, Round 1, which alleviated the neck pain to a tolerable level.

Well, now the school year was starting.  I was still feeling lightheaded and dizzy if I turned too fast, still had some neck pain, had a persistent headache.  I felt like my mind was moving through sludge.  Getting through groups of elementary kids was…difficult.  And the problem was, it continued to worsen, to the point where I was having daily migraines and took medical leave that October.

After that, I had the school district breathing down my neck to get back to work.  We were struggling to find a solution.  I couldn’t think clearly most of the time, even having word recall issues.  I struggled even knowing what it was that was wrong with me, just that I wasn’t right.  My general practitioner isn’t much help, but we do find a “concussion doctor” who, of course, is an hour away and doesn’t take our insurance.  

After a couple of months of testing, I find that I now have eyes that focus in slightly different directions.  I go to physical therapy (Round 2) to work on visual integration, I go to speech therapy to work on the mental fog and memory.  I am hiding in my room in the dark with one lamp, and telling my family to keep quiet.  Thank goodness my kids are teens.

It comes to the point I have to resign from my job in May 2023.  At that point, even with nearly six months of treatment orchestrated by the concussion expert, I’m still having daily migraines.  My speech therapist was wonderful, and had me walking the track around the rehab center’s gym while I performed memory and cognition tasks to aid in desensitization to light and noise.

Now, nearly two years after, I have headaches almost daily, but they are headaches, not migraines.  I’ve had two sets of lenses because my eye focus has changed.  But the mental fog has dissipated, and I feel like myself again for the most part.  I seem to misspell words more now, and memory is still an issue compared to pre-concussion.  And I’ve picked up a slight stutter that comes out when my brain is overdoing it.

Now, why do I tell you all this?  As speech-language pathologists, we often are treating individuals who have experienced a concussion, and we may not even realize it.  Because no one tells the speech teacher in the corner closet, right?  And we should be aware that these symptoms can persist weeks, months, even years after the typical recovery period.

 We need to be prepared to go to bat for our students who might need extra help with coping strategies in the aftermath of a concussion.  They may not be able to describe what’s wrong.  These challenges are invisible, and in many ways, unmeasurable, and can add up to creating emotional issues as well.  Students who have experienced a concussion may need accommodations that are not “listed” in our handy IEP software.  They may need cognitive therapy to address attention, memory or problem-solving issues.  Counseling may even be necessary.

As speech-language professionals, we need to raise awareness and understanding both of concussions and post-concussive disorder.  We need to help families navigate the symptoms, and educate teachers watch for the signs in their students.

Together, we can help them on the road to recovery, one step at a time.

Wishing the best to my powerful speechies,

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The post The Long Road: My Journey with Post-Concussive Disorder appeared first on Mrs. Speech Online.